Tuesday, November 06, 2007

This is what nightmares are made of...

Seriously, chilling to my core. Brief synopsis: a couple birthed their ninth child in the state of Nebraska, which has a rigid rule regarding blood testing of newborns for rare genetic diseases. This couple declined the test, and their five week old was forcibly removed from his nursing mother to foster care for 5 and a half days. The social workers were ordered to give the baby formula.

Get this: if for some reason this small baby did have one of the diseases (PKU) that the test was looking for, formula would have killed him.

The social workers and foster mother, fortunately, took pity on mom and baby (hey how about that, the system actually worked in that respect) and called the mother every few hours to come and feed her son on the sly, as the visits were technically unauthorized.

Here is a link to the blog of this family's attorney, and the segment that appeared on Rush Limbaugh.


Here are a few links to the people who can make the change that NEEDS to be made, for the sake of babies and families in this state (directly taken from a message board that the mother posted to:)

"For 2 legislative sessions, State Senator Synowiecki has proposed exemption legislation. The 2nd time we had high hopes. We had more people testifying in favor of the bill than against, signed testimonies of the trauma the screening had caused other parents, and a petition signed by over 100 people. There were only a couple of testimonies from the state against the bill. However, it was killed in the health and human services committee and never made it to the floor for a vote. Here are e-mails for the committee:"


Think of the choices you make every day, not even necessarily parenting choices. What if, one day, one of those choices turns into this type of nightmare for your family?

When we had G in a hospital in Lansing, we were harassed every day of our five day stay over our decision to forgo the antibacterial eye drops, the Vitamin K injection, and the Hepatitis B vaccination. We had nurses, residents, and finally the doctors themselves coming into our room scratching their heads and wondering about our reasoning. We have our reasons- mainly, that there is so little risk of G needing any of the above, that the risks involved with injecting or dripping her with any of it outweigh the benefits. Above all, I AM THE MOTHER, AND I SAID SO. The blood test that is described in Nebraska law is also demanded by MI law, and we did allow this. However, had we decided to decline consent, our rights as parents should be respected.

Please write to these government officials.

No comments: